Recent Questions
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Bilateral breast cancer. Are there any survivors here? I was diagnosed 1/31 on left. Follow up studies showed right sided disease. I had a double mastectomy2/25 no reconstruction. I just turned 50 in April.
Asked by anonymous
Learning About Breast Cancer-
anonymous
Survivor since 2014
Hello and yes!. This year will be my 6th year anniversary "No evidence of disease." I was diagnosed in July of 2014 Stage 1a. I was 41 when diagnosed and now 47. I had a bilateral mastectomy and reconstruction, 12 weeks of chemo, and 1 year therapy drug given intravenously. My mom had...
Comment 0Hello and yes!. This year will be my 6th year anniversary "No evidence of disease." I was diagnosed in July of 2014 Stage 1a. I was 41 when diagnosed and now 47. I had a bilateral mastectomy and reconstruction, 12 weeks of chemo, and 1 year therapy drug given intravenously. My mom had breast cancer in her late 50's and now my aunt who is almost 80 just got diagnosed.
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Recommendations on caring for my skin during radiation treatments
Asked by anonymous
stage_2b Patient-
anonymous
Survivor since 2013
Every place has what they prefer you to use, I was told before my first treatment. I used pure aloe vera gel at my place's recommendations. Just be sure that no matter what you use don't apply it right before your treatment or from I've heard it may cause burns.
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anonymous
Learning About Breast Cancer
I finished radiation yesterday. i used calendula 4 times per day and aquaphor at night. Miaderma is superior because it is water based but more expensive. I had some folliculitis, i had a double mastectomy when that ocurred I used hydrocortisone on that area. good luck i know it is scary.
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Does anyone know treatment for lobular carcinoma
Asked by anonymous
Learning About Breast Cancer-
anonymous
Survivor since 2013
Everyone's cancer is unique to them even with the same diagnosis as yours. Therefore treatments are individualized. Your team needs to be discussing your treatment plan with you. Take care, Betti
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anonymous
Survivor since 2014
A lot will depend on the testing they do on the cancer cells. If they come back Estrogen (ER), Progesterone (PR), and/or HER2 positive, that will determine your course for treatment. And the grade is another factor too.
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port removal time
Asked by anonymous
Survivor since 2013-
anonymous
Survivor since 2013
Well, I've had my port for 7 years and go in every 6 weeks and get it flushed. It has never been an issue until last week. They got it accessed but got no blood return. They tried several things but nothing worked. I ended up getting a dose of a clot busting med. into the port and sat for an...
2 comments 0Well, I've had my port for 7 years and go in every 6 weeks and get it flushed. It has never been an issue until last week. They got it accessed but got no blood return. They tried several things but nothing worked. I ended up getting a dose of a clot busting med. into the port and sat for an hour. At the end of the hour still no blood so I'd have to sit another hour when the nurse noted some blood in the line. They aspirated some blood and thought it may contain some small clots. I decided that perhaps it's time to have it removed and my Onc. ARNP agreed with me. She sent a referral to an Interventional Radiology clinic to look into getting it out. I assume they will call Monday as the referral was sent late to them on Friday. I hoped to have it forever but guess God felt now is the time to get rid of it.
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If a woman did her mammogram in 2019 when will she go back for another one? No cancers in herself or family age 66
Asked by anonymous
Learning About Breast Cancer-
anonymous
Survivor since 2013
The last time I knew (unless guidelines have changed) at age 66 a woman needs a study annually unless something new comes up as in changes to the breasts. I had an annual study starting at age 50 with no family history and yet developed cancer 2 months after my 62nd BD. Make sure and do your...
1 comment 0The last time I knew (unless guidelines have changed) at age 66 a woman needs a study annually unless something new comes up as in changes to the breasts. I had an annual study starting at age 50 with no family history and yet developed cancer 2 months after my 62nd BD. Make sure and do your monthly checks and have a doctor do an exam once a year.
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Has anyone ever met someone, or heard of someone get told by their radiologist that their lump is a BIRADS 5, but then later on the biopsy results came back negative? Meaning that the radiologist mis-categorized the lump before doing the biopsy?
Asked by anonymous
Learning About Breast Cancer-
anonymous
Survivor since 2013
What I was trying to say is cancerous lumps seen on a mammogram usually look different from benign findings but not always. When I had a yearly mammogram back in Dec. of 2012 2 new areas were seen next to each other that hadn't been seen the year before so it was enough to be called back for...
8 comments 2What I was trying to say is cancerous lumps seen on a mammogram usually look different from benign findings but not always. When I had a yearly mammogram back in Dec. of 2012 2 new areas were seen next to each other that hadn't been seen the year before so it was enough to be called back for additional images and U/S. The results went from a BiRads 0 to a BiRads 4. It turns out I had 2 areas of 2 different types of cancer. In the surgical specimen 2 additional areas were seen; one being the same as one of the areas we biopsied and the other a 3rd different type of cancer. None of mine produced lumps it was just changes seen since the one a year earlier. I'm sorry if I upset you with what I wrote earlier.
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Has anyone ever heard of BIRADS 5 turning out not to be cancer?
Asked by anonymous
Learning About Breast Cancer-
anonymous
Survivor since 2013
BiRads 5 simply means it looks like cancer on your mammogram as it has certain characteristics. The only way to determine if it is indeed cancer is to do a biopsy. I used to be a mammographer and it only went to 5 but they have added a 6 now meaning it is cancer already known (having had a...
1 comment 1BiRads 5 simply means it looks like cancer on your mammogram as it has certain characteristics. The only way to determine if it is indeed cancer is to do a biopsy. I used to be a mammographer and it only went to 5 but they have added a 6 now meaning it is cancer already known (having had a biopsy and it's known to have found cancer.
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Today I started radiation treatments for my breast cancer, when do the side effects start and what can I expect?
Asked by anonymous
stage_1 Patient-
anonymous
Survivor since 2013
Everyone is different. Some people have some fatigue. My chest and axilla were radiated, both areas turned bright red (like a sunburn). Some people have the skin break down, have blisters, etc. I feel blessed I didn't have major issues. My RT normally would have prescribed an antibiotic...
Comment 0Everyone is different. Some people have some fatigue. My chest and axilla were radiated, both areas turned bright red (like a sunburn). Some people have the skin break down, have blisters, etc. I feel blessed I didn't have major issues. My RT normally would have prescribed an antibiotic cream for the last couple of weeks but I'm allergic to the main ingredient and since my skin was intact he opted not to have me use it. Every clinic will recommend what to put on the area radiated (I used pure aloe vera gel) and put some on afterwards and before bedtime.
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Please suggest support groups that cam help answer questions regarding Her2 breast cancer. IS THERE ANY ONE OUT THERE THAT HAS SURVIVED THIS TYPE OF BREAST CANCER?
Asked by anonymous
Learning About Breast Cancer- View all 4 answers
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anonymous
Learning About Breast Cancer
I had HER2 cancer in May 2011
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How can I help -
anonymous
stage_2a Patient
My breast cancer was HER2 positive.
1 comment 0
I’m 7 years out with no recurrence. How can I help?
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Can anyone tell me the limitations of PET scan? Surgeon told me that the Pet Scan cannot detect anything less than one centimeter. Is that what you all are hearing?
Asked by anonymous
Learning About Breast Cancer -
there anyone on here that is a survivor of Her2 positive breast cancer, with TNM staging of T3N0M0?.. Stage 2B
Asked by anonymous
Learning About Breast Cancer -
Chemo completed 3/13. Surgery is Wednesday 4/29. What should I pack in my overnight bag? Left axilla node removal and ratified double mastectomy with no reconstruction at this time
Asked by anonymous
stage_2b Patient-
anonymous
Survivor since 2013
i packed some necessities such as a toothbrush and paste, dental floss, body wash, lotion, etc. Hospitals will charge you for what they give you and any way I could save some money I tried to do. I also took some hard candies to suck on which on the day of surgery I had to get permission since...
Comment 0i packed some necessities such as a toothbrush and paste, dental floss, body wash, lotion, etc. Hospitals will charge you for what they give you and any way I could save some money I tried to do. I also took some hard candies to suck on which on the day of surgery I had to get permission since I was still on a liquid diet and got the nurse's OK.
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Had chemo and surgery. Now I am about to start Kadycla. Anyone here know about Kadycla effects?
Asked by anonymous
Learning About Breast Cancer -
I have invasive ductalcancer, grade 3 with clear margins. I am 73. Does that make a difference?
Asked by anonymous
Learning About Breast Cancer -
How long does a radio session last?
Asked by anonymous
Learning About Breast Cancer -
I am 73 and will get chemo and radiation. How tired will I be?
Asked by anonymous
Learning About Breast Cancer-
anonymous
Survivor since 2013
Everyone is affected differently. You need to be asking your team about your treatments and possible side effects. I had a mastectomy, 4 chemo. infusions, 28 radiation treatments, and was on a hormone blocker for 5 years. For the most part I never really had any issues with any of it other...
Comment 0Everyone is affected differently. You need to be asking your team about your treatments and possible side effects. I had a mastectomy, 4 chemo. infusions, 28 radiation treatments, and was on a hormone blocker for 5 years. For the most part I never really had any issues with any of it other than the expected hair loss. I was diagnosed a couple of months after my 62nd birthday.
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I am 28 and have just diagnosed with stage 3 breast cancer ,my breast feels really cold and tender is this normal ? I haven’t been to the doctor since I was diagnosed my first appointment with a surgeon is this Thursday:(
Asked by anonymous
stage_3a Patient- View all 4 answers
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anonymous
Survivor since 2013
I'm sorry you had to join this group. My suggestion is to take someone with you for your appointment on Thursday. I'll keep you in my prayers, Betti
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anonymous
stage_3a Patient
I can’t bring no one , because of this virus :(
1 comment 0
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I am 35 and have just been diagnosed with level 2 breast cancer. Any advice as to whether I should surgery first or start treatments?
Asked by anonymous
Learning About Breast Cancer-
anonymous
Survivor since 2013
What does your doctor(s) recommend? My Oncologist wanted me to do some chemotherapy first but the Surgeon nixed it. Sometimes doing chemo. first will shrink the tumor so one can possibly get by with a lumpectomy rather than a mastectomy. Gather all the info. you can both pros and cons for both...
Comment 0What does your doctor(s) recommend? My Oncologist wanted me to do some chemotherapy first but the Surgeon nixed it. Sometimes doing chemo. first will shrink the tumor so one can possibly get by with a lumpectomy rather than a mastectomy. Gather all the info. you can both pros and cons for both and decide what you feel is best for you. If need be seek an additional opinion or two.
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I just feel off since chemo, no severe sickness yet. Is this normal on day 4?
Asked by anonymous
Learning About Breast Cancer -
Does radiation lower your immunize system?
Asked by anonymous
Learning About Breast Cancer-
anonymous
Survivor since 2013
I would guess yes but I'm not a doctor. I know recently I ran into a nurse at the grocery store when this corona virus was starting to take hold. I asked her how long one's immune system is considered compromised. She told me it normally returns to normal a year after your last cancer treatment.
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I was getting up on my bed which is kind of high popping sound I know there's something wrong because it's happened before and that for the last two years I've been with low energy I get wore out really easy I have itching all over my from my breasts down
Asked by anonymous
Learning About Breast Cancer -
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how do I find a support group?
Asked by anonymous
Learning About Breast Cancer-
anonymous
Survivor since 2013
My nurse navigator told me about a local support group. I didn't join them as I moved away after completing my chemo. but joined one after I got settled into my new home.
Comment 2 -
anonymous
stage_1 Patient
You can start wherever it is that you’re getting treatment; they usually have social workers to help with this. If you contact the American Cancer Society, they too can help you find a group in your area. The ladies on this site have always been very helpful. I belong to a different online group...
Comment 1You can start wherever it is that you’re getting treatment; they usually have social workers to help with this. If you contact the American Cancer Society, they too can help you find a group in your area. The ladies on this site have always been very helpful. I belong to a different online group called mybc.com. But if you prefer the face to face support, contact the social workers at your hospital/clinic.
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Can i get my permanent eyeliner touched up while having radiation therapy?
Asked by anonymous
Learning About Breast Cancer-
anonymous
Survivor since 2013
How does the person doing it feel about it? I was almost done with radiation and needed my face waxed. The gal was a little leery even though it was my chest and axilla being radiated. She was afraid the skin on my face would be thinned out some and didn't want to tear the skin accidently. Is...
Comment 1How does the person doing it feel about it? I was almost done with radiation and needed my face waxed. The gal was a little leery even though it was my chest and axilla being radiated. She was afraid the skin on my face would be thinned out some and didn't want to tear the skin accidently. Is it something that can wait until you are done with treatments?
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