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Newly diagnosed after a year of close follow upgrade 8mm IDC grade 3! I'm so scared! I want to live is all! Any words info welcome

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anonymous

over 5 years
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  • Sharon Danielson Profile
    anonymes
    Survivant depuis 2007
    First of all, try not to go to the dark side. We ALL have a tendency to throw in the towel and start writing our obituary. 8mm is SMALL! IDC, is the most common types of breast cancer. Grade 3 means its a fast mover so it will get taken care of quickly. My cancer ... going on 8 years, was 2.3CM IDC, grade 2-3. It was taken care of, I had a mastectomy (my choice and no reconstruction) 4 rounds of chemo. and 5 years of hormone therapy. DONE & still living!!! Just like you, I thought I was dead, gone, dust when I received the diagnosis. My dear friend was an RN who used to run a breast diagnostic clinic. She is the one who dragged me back from the edge of the mental cliff. You have all the more reason to consider this a bump in your road of life. Yes, it is scary, a royal pain to go through treatment but please take the awful thoughts out of your head. You will live and no reason not to believe you will have a full and wonderful life. Please get out from underneath that dark cloud over your head. You will be ok. Hang in there, keep in touch, we are all here to help you through this. Take care, Sharon
    over 5 years Flag
    • Therese McKenna Profile
      anonymes
      Patient

      Oh my gosh Sharon how I need you! Thank you thank you thank you! Ok I'm going to stay on the bright side! I go Monday to see my surgeon and begin the journey to recovery! I am also opting for mastectomy and mostly afraid of chemo I think! I have...

      plus

      Oh my gosh Sharon how I need you! Thank you thank you thank you! Ok I'm going to stay on the bright side! I go Monday to see my surgeon and begin the journey to recovery! I am also opting for mastectomy and mostly afraid of chemo I think! I have been going religiously for mammo's had aytypia a year ago -clear margins, An mri then an MRI guided biopsy that was also benign! Went back in and there was that cancer thing! I'm hopeful for the size I think... Does that mean it's early? It grew in 6 months? Thank you for giving me breath today, I can do this!

      over 5 years Flag
    • Sharon Danielson Profile
      anonymes
      Survivant depuis 2007

      Therese, I am glad I can help in a small way. My tumor went from "can't find it" to 2.3cm in seven months. Don't worry the size, or how fast it grew. The fact you already know is it is aggressive. My pal told me to conside your enemy has been...

      plus

      Therese, I am glad I can help in a small way. My tumor went from "can't find it" to 2.3cm in seven months. Don't worry the size, or how fast it grew. The fact you already know is it is aggressive. My pal told me to conside your enemy has been identified, you know some facts about it. You did ALL that you could, stuff happens. You are going to gather more information on Monday. PLEASE get yourself a 3 ring binder. Start collecting copies of any tests you have. You are entitled to these. Keep them in your binder. Gather cards from all the offices you visit and tape them on the inside of the cover. Have a calendar in the binder and put your appointments on that calendar in addition to the other places you put your appointments. I know lots of people rely on their cell phone, etc. Your cell phone can "croak" have a hard copy of your appointments on your calendar. Keep several copies of the medications you take, even vitamins. Include your allergies. Every office will want a
      copy. I want you to take a family member, friend, or spouse with you to every consultation appointment. They HAVE to take notes! Copy, print and put it in your binder.
      You will not remember what is said. You are going to have lots of pre-treatment appointments. Every team has their own requirements. Your treatment will be different from others because they have the ability to test individual cells to treat your specific cancer. It is no longer the shotgun, approach.... much more designer!
      The facts you will be finding out will be Type, yours is IDC., your stage, you didn't mention it, Your grade 3, and your hormone status. This will give you a very clear picture of your disease BUT you still won't know the final diagnosis until after your surgery and get the pathology report. Even with the diagnosis of breast cancer, you got some things to be happy about....that dang thing is only 8mm! YES, this is considered EARLY!!! Woo-Hoo! You will be ok, hang in there.... now go have a better weekend. Take care, Sharon

      over 5 years Flag
    • Therese McKenna Profile
      anonymes
      Patient

      Hi Sharon ok good to know, I'll go get that stuff together and be sure to bring it all with me! I was under the assumption that I wouldn't know the stage until after surgery since they determined the type and grade by biobsy.... Or should I know...

      plus

      Hi Sharon ok good to know, I'll go get that stuff together and be sure to bring it all with me! I was under the assumption that I wouldn't know the stage until after surgery since they determined the type and grade by biobsy.... Or should I know the stage by now?

      over 5 years Flag
    • Sharon Danielson Profile
      anonymes
      Survivant depuis 2007

      Your doctor may wait to stage you after the surgery. I was given a preliminary stage of 2-A after surgery when some cells were found in a lymph node, my stage went to 2-B. That could be one of the questions you ask the surgeon. Take care, Sharon

      over 5 years Flag
  • anonymes Profile
    anonymes
    Survivant depuis 2013
    The early part is the hardest till you get a plan and visit all the doctors , hang in there it will get better.. Sending prayers during this difficult time, make sure you round up support from family and friends made a world of difference.
    over 5 years Comment Flag
  • Norma  Cook Profile
    anonymes
    Survivant depuis 2014
    Hi Therese: This really is a roller-coaster ride, so hang on tight. Finding the tumor early and small is a big advantage. Mine was 8mm IDC and Grade 3, as well. I'm 55 years old, so I have been having mammograms for a while, but my family doctor told me at my annual physical in 2013 that I could wait two years before having my next mammogram because that was the Canadian standard of care for patients with no family history or other major risk factors for breast cancer. When he saw by the expression on my face that I wasn't comfortable with that recommendation, he offered me the option of yearly mammograms if I wanted, which I gladly accepted. It took a few months to get in for an appointment, but it soon became clear that God had been guiding my steps. A call came one week later to repeat the mammogram on my right breast, which led to a referral for a biopsy. The rest, as they say, is history. Everything went like clockwork as I was whisked from one procedure to another, had my lumpectomy and sentinel node biopsy (all clear), then spent five weeks at a hostel in the city to have radiation treatments. I'm sure you will find that as difficult as it is to travel this path, the support of family and friends is such a blessing. Each of us on this site has been through a lot of what you are facing and we know how much we need each other. Be sure to let us know how your appointment goes on Monday. You'll be in my prayers.
    over 5 years Flag
    • Therese McKenna Profile
      anonymes
      Patient

      Wow I do believe God does work that way too as I have just been persistent in getting these done with no family history or anything. It is so encouraging to hear these stories! I am so glad I posted and so blessed you all responded to me and will...

      plus

      Wow I do believe God does work that way too as I have just been persistent in getting these done with no family history or anything. It is so encouraging to hear these stories! I am so glad I posted and so blessed you all responded to me and will walk with me through this! I just keep asking myself how the heck cancer got to me.. Like what did I do wrong, eat wrong, breathe in wrong... That I suppose is the question at the center of the unknown! I wake up now with Hope and strength because of you guys! I'm getting through this!!!!! And then I'll be sharing my support with the women to follow! Xo thank you!

      over 5 years Flag

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