Survivor since 2007
I did not have the same type of cancer.... tubular... which is rare. I did have the choice of having a lumpectomy or mastectomy. I chose the mastectomy for the following reasons... If I had a lumpectomy, and they did not get clear margins, I would have to keep having surgery after surgery until they did. With a lumpectomy, I would have had to have radiation therapy. Every day for 6 weeks. I have to take a ferry boat to the mainland, and it isn't that reliable and it is expensive. If I chose a mastectomy, no radiation. The lumpectomy would have been so disfiguring and on the mid-line side of my breast, there was no way to "make-it-pretty" It would always look like a shark took a bite out of my boob. So, for me it was a mastectomy and I also chose not to have reconstruction. I am very happy with my decision.
That being said.... it is a very individual decision. As you can read, there were many things that went into my decision so you can't read any one persons reasons and have them all fit for you. Since you have this type of cancer, which again might change your options. Breast cancer isn't just cut and dried. They have become so good at pathology your decision how to treat your breast cancer might be completely different than the next woman who might (on the surface) have the same diagnosis. You don't know what her pathology reads, how large, or how aggressive her cancer is. It's also ok to get a second opinion. My breast cancer and circumstances are completely different than yours and any other woman. Good luck to you and take care, Sharon