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Privacy Policy

(Effective as of May 24, 2011)

The National Breast Cancer Foundation's Privacy Policy is designed to help you understand how we collect and use the personal information you decide to share, and help you make informed decisions when using the NBCF service located at BeyondTheShock.com ("BTS", "Website" or "Site").

By using or accessing BTS, you are accepting the practices described in this Privacy Policy. This privacy statement covers the site BeyondTheShock.com.

Sign Up Through Facebook

For your convenience, we provide the option to sign up for BTS through Facebook. We adhere to Facebook’s Platform Policies, which protect the privacy of your Facebook account and personal information.

Privacy of Donors

In a manner consistent with the following privacy policy, we respect and monitor the privacy of our donors. We make every effort to disclose donor information only as specifically instructed by the donor and in a manner consistent with his or her wishes. NBCF will not sell, trade, or share a donor’s personal information with anyone else, nor send donor mailings on behalf of other organizations. If you have a question about donor privacy, please contact us through the link on this site.

The Information We Collect

When you visit BTS you provide us with two types of information: personal information you knowingly choose to disclose that is collected by us and Website use information collected by us as you interact with our Website.

When you register with BTS, you provide us with certain personal information, such as your name, your email address, your city, your story, your relation to breast cancer, any photo you upload as your profile picture and any other personal or preference information that you provide to us.

When you enter BTS, we collect your browser type and IP address. This information is gathered from all BTS visitors. In addition, we store certain information from your browser using "cookies." A cookie is a piece of data stored on the user's computer tied to information about the user. We use session ID cookies to confirm that users are logged in. If you select "keep me logged in" upon logging in to your account, we use a persistent cookie that stores your login ID (but not your password) to make it easier for you to login when you come back to BTS.

When you use BTS, you may form relationships, post comments, perform searches and queries, and transmit information through various channels. We collect this information so that we can provide you the service and offer personalized features.

You post User Content (as defined in the BTS Terms of Use) on the Site at your own risk. Although we allow you to set privacy options that limit access to your page, please be aware that no security measures are perfect or impenetrable. We cannot control the actions of other Users. Therefore, we cannot and do not guarantee that User Content you post on the Site will not be viewed by unauthorized persons. We are not responsible for circumvention of any privacy settings or security measures contained on the Site. You understand and acknowledge that, even after removal, copies of User Content may remain viewable in cached and archived pages or if other Users have copied or stored your User Content.

Any improper collection or misuse of information provided on BTS is a violation of the BTS Terms of Service. To report a violation, contact us.

By using BTS, you are consenting to have your personal data transferred to and processed in the United States.

Children Under Age 13

BTS does not knowingly collect or solicit personal information from anyone under the age of 13 or knowingly allow such persons to register. If you are under 13, please do not send any information about yourself to us, including your name, address, telephone number, or email address. No one under age 13 is allowed to provide any personal information to or on BTS. In the event that we learn that we have collected personal information from a child under age 13 without verification of parental consent, we will delete that information as quickly as possible. If you believe that we might have any information from or about a child under 13, please contact us.

Children Between the Ages of 13 and 18

We strongly recommend that minors over the age of 13 ask their parents for permission before sending any information about themselves to anyone over the Internet.

Use of Information Obtained by BTS

When you register with BTS, you create your own profile and privacy settings. Your profile information, as well as your name, and photo, are displayed to all users of BTS unless the privacy setting is specified to not display your name in posts made on BTS. We may occasionally use your name and email address to send you notifications regarding new services offered by BTS that we think you may find valuable.

Profile information is used by BTS primarily to be presented back to and edited by you when you access the service and to be presented to others permitted to view that information by your privacy settings.

Profile information you submit to BTS will be available to users of BTS who you allow to access the information through your privacy settings. Your profile, including any information you have made public, will be available to any third party search engines. You can specify in your privacy settings whether or not to display your email address in your profile.

BTS will send you service-related announcements through the general operation of the service. For instance, if someone answers a question you asked on the Site, you will receive an email alerting you to that fact. You can opt out of these emails at any time by going to “Account Info” and specifying what email alerts you wish to receive.

Sharing Your Information with Third Parties

BTS is about sharing information with others – breast cancer survivors, supporters, friends and family - while providing you with controls that restrict other third parties from accessing your information. We allow you to choose your privacy settings in order to allow you to make informed choices about who has access to your information. We do not provide contact information to third party marketers without your permission. We share your information with third parties only in limited circumstances where we believe such sharing is 1) reasonably necessary to offer a service, 2) legally required or, 3) permitted by you.

For example:

  • We may use third parties to facilitate our business, such as to host the service at a co-location facility for servers, to send out email updates about BTS, to remove repetitive information from our user lists, to process payments for products or services, or to provide search results or links (including sponsored links). In connection with these offerings and business operations, our service providers may have access to your personal information for use for a limited time in connection with these business activities. Where we utilize third parties for the processing of any personal information, we implement reasonable contractual and technical protections limiting the use of that information to the BTS-specified purposes.
  • In conjunction with the use of the BTS Platform, third parties who agree to abide by the BTS Platform Terms of Service, including restrictions on access, storage and use of such data, may have limited access to your personal information. We have undertaken contractual and technical steps to restrict possible misuse of such information by such third parties, but of course cannot and do not guarantee that all third parties will abide by such agreements. Please report any suspected misuse of information through the BTS Platform here and we will investigate any such claim and take appropriate action against the third party. You may opt-out of any sharing of information through the BTS Platform on the My Account page.
  • We may be required to disclose user information pursuant to lawful requests, such as subpoenas or court orders, or in compliance with applicable laws. We do not reveal information until we have a good faith belief that an information request by law enforcement or private litigants meets applicable legal standards. Additionally, we may share account or other information when we believe it is necessary to comply with law, to protect our interests or property, to prevent fraud or other illegal activity perpetrated through the BTS service or using the BTS name, or to prevent imminent bodily harm. This may include sharing information with other companies, lawyers, agents or government agencies.
  • We allow you to choose to share information with marketers or electronic commerce providers through sponsored groups or other on-site offers.
  • We may provide services jointly with other companies on BTS. We will use reasonable efforts to help you be aware that another company is involved with a service provided on BTS, and we may share customer information with that company in connection with your use of that store or service.
  • If the ownership of all or substantially all of the NBCF business, or individual business units owned by NBCF, Inc., were to change, your user information may be transferred to the new owner so the service can continue operations. In any such transfer of information, your user information would remain subject to the promises made in the pre-existing Privacy Policy, i.e., the latest policy in effect before the change occurred.

NBCF will not sell, trade, or share your personal information with anyone else, nor send you mailings on behalf of other organizations. If you have a question about privacy, please contact us.


BTS may contain links to other websites. We are of course not responsible for the privacy practices of other websites. We encourage our users to be aware when they leave our site to read the privacy statements of each and every website that collects personally identifiable information. This Privacy Policy applies solely to information collected by BTS. We are not responsible for any links posted (through a question, answer or comment) on BTS made by Users.

Changing or Removing Information

Access and control over most personal information on BTS is readily available through the profile editing tools. BTS users may modify or remove any of their profile information at any time by logging into their account. Information will be updated immediately. Individuals who wish to deactivate their BTS account may do so on the Account Info page. Removed information may persist in backup copies for a reasonable period of time but will not be generally available to members of BTS.

Where you make use of the communication features of the service to share information with other individuals on BTS, you may edit and delete the information. Please be aware that all posts (including questions, answers and comments) are visible to the users of BTS and the general public.

BTS reserves the right to rephrase any questions asked on the Site if the question is not clearly stated, contains misspellings or not presented in a question form. We will always contact you if we feel a question needs to be rephrased. We have this policy in order to ensure that questions are easily searchable to help others who may have the same questions and are looking for answers.


BTS takes appropriate precautions to protect our users' information. Your account information is located on a secured server. Because email is not recognized as a secure communication, we request that you not send private information to us by email. If you have any questions about the security of the BTS Website, please contact us.

Terms of Use, Notices and Revisions

If you choose to visit BTS, your visit and any dispute over privacy is subject to this Privacy Policy and our Terms of Use, including limitations on damages, arbitration of, and application of law of the state of Texas. We reserve the right to change our Privacy Policy and our Terms of Use at any time. Non-material changes and clarifications will take effect immediately, and material changes will take effect within 30 days of their posting on this site. If we make changes, we will post them and will indicate at the top of this page the policy's effective date. We therefore encourage you to refer to this policy on an ongoing basis so that you understand our current privacy policy. Unless stated otherwise, our current privacy policy applies to all information that we have about you and your account.

Contacting Us

If you have any questions about this privacy policy, please contact us. You may also contact us by mail at:

National Breast Cancer Foundation, Inc.
2600 Network Blvd., Suite 300
Frisco, Texas 75034

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