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Ladies, mastectomy surgery 1/28 will keeping 1 cause me more issues than removing both. Hearing problems with one: muscle imbalances, sore neck & shoulder on breast side, issues with prosthetic, need to hear if you kept one and have problems?

Penny Walton Profile
Asked by

anonymous

Survivor since 2014 about 7 years
 
  • Roz Potenza Profile
    anonymous
    Patient
    Penny, I'm sorry I cannot offer you any information either other than to seek help from your doctors if you have significant pain. I had a lumpectomy so did not have to go through the gamet of reconstruction, etc. but my friend did and I know it took her about two years to get things all sorted out. She had only one breast removed but had to wait for reconstruction and I know she talked of discomfort and healing issues. She told me that the reconstruction, for her, was much more difficult than the initial mastectomy. I know this doesn't help answer any of your questions but each one of us is so different, even if you don't get a solid answer here please seek it from your medical team. I wish you love and luck and quick healing.
    about 7 years Flag
    • Penny Walton Profile
      anonymous
      Survivor since 2014

      Roz,

      Thanks so much, I haven't had surgery yet, but am scheduled for Jan 28th. I thought I was struggling with the mastectomy, then I heard from my physical therapists (spinal problems) about all the issues they see with the muscle imbalances...

      more

      Roz,

      Thanks so much, I haven't had surgery yet, but am scheduled for Jan 28th. I thought I was struggling with the mastectomy, then I heard from my physical therapists (spinal problems) about all the issues they see with the muscle imbalances and such with having a single breast left. So I am trying to decide between one or both breast, part of me hates to think of the trauma of both, but I have to have radiation and it could be 2 years before reconstructions and hearing about the problems caused by just one, makes me wonder if I shouldn't just do a bi-lateral. I hope you are doing well and so appreciate the support.

      Prayers & Blessings,
      Penny

      about 7 years Flag
    • Roz Potenza Profile
      anonymous
      Patient

      You have to take this whole process one step at a time. It can feel very overwhelming at different times. I am finally on the other side of things now, hair is growing back and scars are fading but this past summer felt like it was about a year...

      more

      You have to take this whole process one step at a time. It can feel very overwhelming at different times. I am finally on the other side of things now, hair is growing back and scars are fading but this past summer felt like it was about a year long. I'll say a prayer for you to get through your surgery well. Stay in touch.

      about 7 years Flag
  • Leah Fortune Profile
    anonymous
    Stage 4 Patient
    I have a unilateral. 11-9-12 my oncologist said I won't get to reconstruction til 2014. It's alittle weird I would of gone with the bi lateral if I had a choice. So far I haven't any noticeable problem. Just the normal ones. I would if done both for piece of mind and I really don't want to go thru it a second time. There are some benefits of having one.
    about 7 years Flag
    • Penny Walton Profile
      anonymous
      Survivor since 2014

      Leah,

      If you have a moment, would you please share with me the benefits of having one? I am really struggling with this. I was praying for a lumpectomy, then when it was discovered how large and invasive the cancer was, it was no longer an...

      more

      Leah,

      If you have a moment, would you please share with me the benefits of having one? I am really struggling with this. I was praying for a lumpectomy, then when it was discovered how large and invasive the cancer was, it was no longer an option. I also have a rare spinal condition and arthritis in my neck, so thinking that I could have muscular imbalances, additional pain, etc. related to just having one breast for 1 - 2 years, really makes me wonder if I should do a bi lateral.

      I greatly appreciate your response. Hope you are doing well and sending prayers and positive vibes your way.

      Regards, Penny

      about 7 years Flag
  • Thumb avatar default
    anonymous
    Learning About Breast Cancer
    I had a bilateral mastectomy in August 28, 2012. I don't regret the decision at all. It was an easy decision for me because I felt that I had done enough research to realize that A lumpectomy was not something that I was comfortable with. A bilateral mastectomy sounded the best for me to keep the cancer away from the other breast. I don't regret the decision I am very comfortable with my body. I will be having another surgery for reconstructive surgery to both my breast on July 2013. I am happy that I did the bilateral mastectomy. God bless.
    about 7 years Comment Flag
  • André Roberts Profile
    anonymous
    Stage 1 Patient
    Gosh I wish I could help with your question. I'm sure the other ladies will start offering their experiences with you soon. Hang in there & stop stressing! Prayers to you.
    about 7 years Comment Flag
  • Carol M Profile
    anonymous
    Learning About Breast Cancer
    Penny, my thoughts and prayers are with you. As of tomorrow I will be joining my pink sisters who have had a bilateral-mastectomy. Please take some time for yourself and try to keep busy. The final week before my surgery was extremely hard. All the best to you.
    about 7 years Flag
    • Tammy Tjader Profile
      anonymous
      Stage 0 Patient

      Hi Carol,
      Best of luck to you and see you at the other end.

      about 7 years Flag
  • Sheila Porter Profile
    anonymous
    Stage 2A Patient
    I had one breast removed July2, 2012 - I can't say I have any "imbalance" Your always going to have discomfort and some weakness on that side due to the fact they are taking so much away from that area. They only took 3 lymph nodes and I still have some problems with lymphedema. My incision site is uncomfortable as it goes from the middle of my sternum to under my armpit - where it dents in quite a bit - so I don't have a lot of tissue underneath it. After going through the surgery - I'm glad I only went with one breast instead of two. I would of been absolutely miserable. It was difficult to sleep - or lay in a comfortable position due to the two drains - for a good month. The only thing I would consider is the possibility of it spreading to your other breast. I have an MRI this Tuesday as a "repeat" scan - to make sure I don't have any signs of caner on that side. I unfortunately was diagnosed with Her2 protein after surgery - therefore my caner is more aggressive and would of been probably more beneficial for me to have had a double mastectomy - but no one will know that until after surgery is completed. I'm happy with my decision of only removing one when I did.
    about 7 years Flag
    • Penny Walton Profile
      anonymous
      Survivor since 2014

      Sheila,

      Thank you for sharing with me. I jumped from stage 1, IDC, to stage 3B, IDC & ILC during diagnosis stage. My lymphs are still questionable, won't know until surgery. I don't believe in more is always better, but as I have a rare spinal...

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      Sheila,

      Thank you for sharing with me. I jumped from stage 1, IDC, to stage 3B, IDC & ILC during diagnosis stage. My lymphs are still questionable, won't know until surgery. I don't believe in more is always better, but as I have a rare spinal disease that can cause a lot of pain, plus arthritis in my neck, hearing that you can have "imbalance" issues really concerns me. They are telling me it could be up to two years before I can have any reconstruction and I feel like I am trying to pick the lesser of two evils. Then until your do it and are recovering, you have no way to judge. So far, my right breast is ok and its had multiple test and biopsies.

      My prayers and positive vibes for you to live in amazing, perfect health are with you. Many Blessings to you, Penny

      about 7 years Flag

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