Thank you for answering my question so soon. I think I suffer from Post Traumatic Stress Syndrome watching my mom and other women go tr
Other women go through Breast Cancer....I saw them go through multiple surgeries with Lumpectomies:-( chemo & radiation multiply times. It was horrible from what I remember. Unlike your situation my breast are double D's but this could make a...
Other women go through Breast Cancer....I saw them go through multiple surgeries with Lumpectomies:-( chemo & radiation multiply times. It was horrible from what I remember. Unlike your situation my breast are double D's but this could make a noticeable difference if I get a masectomy but I also heard they can do reconstruction on the table... How painful was the masectomy ? I am so on the edge now:-( my husband thinks I should go with what the doctor says.... The surgeon is willing to do anything I want.I need to find a nurse navigator or some one to talk to, thanks, Carla
Thanks for your comments Jo, you sound like your in a good place right now ..... I hope to be there one day too:-) I'm just pretty scared right now...,I'm coming from a place where I saw my mother die of breast cancer.... But, I'm also very angry...
Thanks for your comments Jo, you sound like your in a good place right now ..... I hope to be there one day too:-) I'm just pretty scared right now...,I'm coming from a place where I saw my mother die of breast cancer.... But, I'm also very angry with her as she didn't follow what her doctors needed her to do..,she found a lump and waited a year before she went back to the doctor, missed chemo appts. And refused a mastectomy ... This was back in the 1970's . So I'm petrified . The difference being I caught mine early and I'm doing something about it now. I took the BRECA and I'm waiting for this first.. A 2-3 week wait ( which makes me nervous.., the waiting) if it's positive I get a double mastectomy ... If not my husband & Doctor want me to have a lumpectomy & 6 weeks radiation...the doctor says I'm going to live a long and happy life after this.....IDK... What was the procedure you decided on , maximum cure without it being a mastectomy ?Not sure what you ment....Do tell!
Won't presume I know the kind of fear your have--with reason--based on your experience with your mom. I can only offer you the real hope that you'll do what is best for you. Patience is lost on all of us that have had this wait. I knew about my...
Won't presume I know the kind of fear your have--with reason--based on your experience with your mom. I can only offer you the real hope that you'll do what is best for you. Patience is lost on all of us that have had this wait. I knew about my lump for a year and then it took two months from the first mammo until the surgergy, then i had to wait for tests before the final plan was in place. My stage 2a IDC was such that the lumpectomy got it all-clean margins and nodes . The DX test on the tumor showed- -#15 out of 100-and placed me in the low recurrence. My surgeon was prepared to do the mastectomy if i wanted it which would make radiation unnecessay. Either way chemo was still a possiblity. It took two weeks for the DX test on the tumor to come in. It determined whether there was a need for chemo. Thankfully it was unnecessary. The oncologist, surgeon and radiologist all assured me they shouldn't overtreat and do more harm. Chemo was more harmful for me-increased survival by 1%. Statistics show my survival rate practically the same as those who elected mastectomy. I elected lumpectomy-and there were several factors that brought the # of rad treatments to 16. I feel I chose the maximum that was necessary for me without overkill. That was for me. My doctors helped me but I had to make the final call. As you said, it's not the 70's. That was a harder and darker time for us. It sounds like you're getting all the info. Trust in yourself, your hubby and dr. Your cancer is different but you will make the best call for you and get well. Hugs. Jo
Oh! I forgot I'll take Femara for 5 years.
I went for the mastectomy, too, at Stage 1B. My tumor was close to my nipple anyway, so a lumpectomy would make me look deformed. I also chose to be aggressive which is a deeply personal choice.
I agree Evelyn
Evelyn & Isabel , how long did it take you to make up your minds? I just got my BRCA back a week ago, which I'm happy to say was negative. Now it's decision time. Did you get reconstruction?
Hi Carla, I had expanders
I had expanders but developed scar tissue, they had to be removed. Have not had reconstruction. Don't want to go through surgery again
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anonymous
Learning About Breast Cancer
Thank you Betsy for getting back to me so soon . I wasn't sick a week ago... Now , this seems to be all encompassing :-( and I'm scared and I'm a total weenie to boot. While I wait for the BRECA to return I'll be getting an MRI and getting a 2 nd...
Thank you Betsy for getting back to me so soon . I wasn't sick a week ago... Now , this seems to be all encompassing :-( and I'm scared and I'm a total weenie to boot. While I wait for the BRECA to return I'll be getting an MRI and getting a 2 nd opinion .... Maybe besides a surgeon I should meet with a medical Oncologist as well. There is so much to do and there seems I need to do it fast ..., I may be a stage 1 but I don't want it to grow as I do my research . Plus I have ILC which only 10% with women who have Breast Cancer gets. I hope you are doing well, again, thank you, Carla
anonymous
Survivor since 2010
Carla, I so relate to so much you are saying. Being diagnosed is everyone's worst nightmare. I have been reading your comments to others and I, too had a mother that died from breast cancer. She was 35 when first diagnosed and died at 50. So when...
Carla, I so relate to so much you are saying. Being diagnosed is everyone's worst nightmare. I have been reading your comments to others and I, too had a mother that died from breast cancer. She was 35 when first diagnosed and died at 50. So when I was diagnosed at 47, I felt my life was over. I thought breast cancer equaled death. I started to become educated about how breast cancer had changed since the 70's and read everything I could. Then with the help of doctors when all the choices were presented with my treatment, it became clear with what I had to do to save myself. Now I live with no fear of recurrence because I know I have done all I can do. The stage of diagnosis you are in now is the toughest because there is so much uncertainty. It feels so overwhelming in the beginning. I was a "weenie" once, too, but no more. Now I feel blessed and in charge of my health as I appreciate every day. Life is good again! My thoughts are with you and remember you are not alone.