loading... close

Has anyone had a recurrence in a previous mastectomy ? An identical tumor came back 10!yrs later in the tissue surrounding an implant where my left breast had been. Next week I will have a re mastectomy, followed by radiation and more chemo.

sheree oden Profile
Asked by

anonymous

Learning About Breast Cancer over 7 years
 
  • Lisa S Profile
    anonymous
    Stage 4 Patient
    Recently diagnosed in my lymph nodes on my chest wall as well as many lymph nodes regionally after mastectomy chemo radiation and hormonal therapy. First dx 1/2010 this time 2/2012. Prayers and hugs going your way. Keep in touch.
    over 7 years Flag
    • sheree oden Profile
      anonymous
      Learning About Breast Cancer

      Lisa....how are you doing? I have thought of you often and hope your tx is manageable. Did you have radiation of chest wall this time? I have chemo and recent surgery and soon radiation. Radiation is new to me...did not have it first time...

      more

      Lisa....how are you doing? I have thought of you often and hope your tx is manageable. Did you have radiation of chest wall this time? I have chemo and recent surgery and soon radiation. Radiation is new to me...did not have it first time round....I wish the best for you on this journey. We have strength and we usually do quite well!

      over 7 years Flag
  • Anne Marie jacintho Profile
    anonymous
    Survivor since 2003
    afternoon Sheree. I was first diagnosed in 2003 had subcutaneous bilateral mastectomies for DCIS had abnormal mammograms again in 2005 had further mastectomies for atypical hyperplasia and in 2008 again abnormal mammograms had simple mastectomies lymph node biopsies with my last mastectomies the surgeon tried to scrap down to my rib cage and axillary area. I had reconstruction with my first surgery in 2003 I still have the original implants in place with my last mastectomies in 2008 my surgeon said it is now like I had a complete simple mastectomy and the remaining tissue was just enough as a skin graft over my implants. The surgery was a piece of cake third time around although more restrictions with movement and lifting for 3 months. It is impossible to get all the breast tissue out unless they go back to the radical mastectomies of the old days. My reoccurence was at the incisional line. Most important is even if you have mastectomies continue to have mammograms, breast ultrasounds or scans...I was fortunate even though I had a reoccurence it was always caught early and only microscopic invasive cells with negative lymph nodes. Have been on tamoxifen for the last three years and will be starting Arimidex in a couple of weeks for another 5 years. May God watch over you on your journey
    over 7 years Flag
    • Connie Logan Profile
      anonymous
      Stage 2B Patient

      I had a bi lateral mastectomy seven weeks ago and they said they got it all out but they never diagnosed it with a mammogram or sonogram because it could not be seen on those two tests. I had this cystic like lump for some time and they checked it...

      more

      I had a bi lateral mastectomy seven weeks ago and they said they got it all out but they never diagnosed it with a mammogram or sonogram because it could not be seen on those two tests. I had this cystic like lump for some time and they checked it 14 months before and said nothing was there. Bottom line is I pushed it this year and they stuck a biopsy needle into this lump and ended up finding a 3 centimeter tumor and a smaller one in the other side. They would never be able to see a new problem if it was left in some tissue. So this is as much of a comment as a question. How do I find out down the line if there is more? I start chemo tomorrow and then the estrogen blocking pills for five years. I am 67 years old and far post menopausal but am having the reconstruction also. It did show up very well when they did a MRI with contrast but don't know if they would do that again. I think a lot of women should be informed that mammograms and sonograms can be very misleading. And I'm rambling because I'm nervous about my first chemo tomorrow so I will stop

      over 7 years Flag
    • sheree oden Profile
      anonymous
      Learning About Breast Cancer

      Connie, you will likely handle your Chemo well. There are so many meds now to manage side effects.

      over 7 years Flag
    • sheree oden Profile
      anonymous
      Learning About Breast Cancer

      Connie sorry I sent previous message too early... Meant to add that MRI can be so helpful,particularly for lobular carcinomas, like mine. MRI picked up my tumor early , and may have saved my life.

      over 7 years Flag
  • Lisa S Profile
    anonymous
    Stage 4 Patient
    Recently diagnosed in my lymph nodes on my chest wall as well as many lymph nodes regionally after mastectomy chemo radiation and hormonal therapy. First dx 1/2010 this time 2/2012. Prayers and hugs going your way. Keep in touch.
    over 7 years Comment Flag
  • Lisa S Profile
    anonymous
    Stage 4 Patient
    PS I dont know why my post posted twice. ;)
    over 7 years Comment Flag
  • Marianne R. Profile
    anonymous
    Survivor since 2011
    So sorry! God Bless your journey. I'm only 1 year out. They say the SE mangement is better now. Some of the new drugs should make it easier.
    over 7 years Flag
    • sheree oden Profile
      anonymous
      Learning About Breast Cancer

      Thank you Marianne for your blessings. Yes, we do have better treatments now.

      over 7 years Flag
  • sheree oden Profile
    anonymous
    Learning About Breast Cancer
    Gosh Anne Marie, you have been through alot. Thanks for your well wishes. I would like to add that MRI is what found this tumor, a lobular carcinoma, hidden behind a n implant , ; I had a modified radical mastectomy 11 yrs ago, followed by chemo . I think Skin sparing mastecs can leave cells behind. MRIs are especially sensitive in picking up tumors. Unfortunately they are expensive. I had to make a written request for one. Then my Dr. Agreed. May you be well...
    over 7 years Comment Flag
Footer 2

Inspire hope by becoming an advocate for breast cancer prevention.

spread the word